Research
to Practice Brief
Improving
Secondary Education and Transition Services through Research
April 2003 •
Vol. 2, Issue 1
Self-Determination:
Supporting Successful Transition
By Christine
D. Bremer, Mera Kachgal, and Kris Schoeller
Introduction
Self-determination
is a concept reflecting the belief that all individuals have the
right to direct their own lives. Students who have self-determination
skills have a stronger chance of being successful in making the
transition to adulthood, including employment and independence (Wehmeyer
& Schwartz, 1997). Starting with the 1990 reauthorization of the
Individuals with Disabilities Education Act (IDEA) (P.L. 101-476),
transition services must be based on student needs and take into
account student interests and preferences. To accomplish this goal,
students must be prepared to participate in planning for their future.
Several curricula have been developed to address the need for self-determination
skills among adolescents, including the skills needed to take control
of the Individualized Education Program (IEP) process. Selected
curricula are identified and described at the end of this brief.
What
is Self-Determination?
Self-determination
“encompasses concepts such as free will, civil and human rights,
freedom of choice, independence, personal agency, self-direction,
and individual responsibility” (University of Illinois at Chicago
National Research & Training Center, 2002). Self-determination theory
(Deci & Ryan, 1985, 2000; Ryan & Deci, 2000) is based on the assumption
that people have inborn tendencies to grow and develop psychologically,
to strive to master challenges in the environment, and to integrate
experience into self-concept. This theory holds that these human
tendencies are fully expressed only within a supportive social context.
That is, self-determination is not achieved simply because an individual
has certain requisite knowledge and skills; it is also important
that key people and institutions in the person’s life provide a
context conducive to self-determination. Abery and Stancliffe (1996)
have noted that even when youth have excellent self-determination
skills, they can be thwarted in their efforts to become self-determined
by people and institutions that present barriers or fail to provide
needed supports.
Self-determination
“refers to the attitudes and abilities required to act as the primary
causal agent in one’s life and to make choices regarding one’s actions
free from undue external influence or interference” (Wehmeyer, 1992,
p. 305). A person’s actions are self-determined if the person acts
autonomously, regulates his or her own behavior, initiates and responds
to events in a manner indicating psychological empowerment, and
behaves in a manner that is self-realizing. That is, the person
acts in ways that make positive use of knowledge and understanding
about his or her own characteristics, strengths, and limitations
(Wehmeyer, Kelchner, & Richards, 1996). A self-determined person
is one who sets goals, makes decisions, sees options, solves problems,
speaks up for himself or herself, understands what supports are
needed for success, and knows how to evaluate outcomes (Martin &
Marshall, 1996).
How
is Self-Determination Learned?
The capabilities
needed to become self-determined are most effectively learned through
real-world experience, which inherently involves taking risks, making
mistakes, and reflecting on outcomes. These experiences help a young
person test his or her strengths and limitations and identify appropriate
short- and long-term goals. In addition to real-world experience,
youth benefit from open, supportive acknowledgement and discussion
of their disability. Too often families, teachers, and other well-intentioned
people protect youth with disabilities from making mistakes and
avoid discussing the details and potential ramifications of the
youth’s disability. Instead, they focus on the positive and steer
the youth away from many experiences where there is a potential
for failure. However, in order to direct their own futures, youth
need to know themselves and understand how their disability might
affect academic learning, relationships, employment, participation
in their communities, and need for supports With this knowledge,
they are better positioned to develop plans, make decisions, and
learn from experience. There can be a fine line, however, between
experiencing the real world and losing one’s sense of personal empowerment.
As Wehmeyer and Kelchner (1996) note:
- Failure
experiences are only learning experiences if they are mitigated.
That is, students only learn from failure when they have the opportunity
to try the experience again with a different strategy or level
of intensity and succeed…It is quite possible that the school
experiences of students with cognitive disabilities contain a
unique mix of overprotection and failure experiences that contribute
to external perceptions of control. (p. 26)
Supporting a
young person in becoming self-determined is not about simply removing
limits and structure. It is, rather, about providing opportunities
so a young person can make meaningful decisions about his or her
own future. For families, teachers, and other adults, supporting
self-determination requires being open to new possibilities and
taking seriously youths’ dreams for the future.
Research
on Self-Determination
Research has
supported the view that self-determination in high school is related
to positive transition outcomes. Wehmeyer and Schwartz (1997) conducted
a study in which they followed up on a group of students who had
graduated from high school. The study included 80 students ages
17 to 22 with mental retardation or learning disabilities. Self-determination
data were collected prior to their high school exit, using a self-report
measure called The Arc’s Self-Determination Scale (Wehmeyer & Kelchner,
1995), a 72-item self-report measure that includes a score for global
self-determination and subscales for individual autonomy, self-regulation,
psychological empowerment, and self-realization. Adult outcomes
for the students were assessed using a scale completed by parents.
Nearly one year
after graduation, findings showed that students whose scores in
high school indicated a higher level of self-determination were
more likely to have experienced a greater number of positive adult
outcomes, including a higher likelihood of being employed and earning
more per hour than those who were not self-determined (Wehmeyer
& Schwartz, 1997, p. 245). The study showed a “consistent trend
characterized by self-determined youth doing better than their peers
one year out of school. Members of the high self-determination group
were more likely to have expressed a preference to live outside
the family home, have a savings or checking account, and be employed
for pay” (Wehmeyer & Schwartz, 1997, p. 253).
Self-Determination
and the Individualized Education Program
The Individuals
with Disabilities Education Act (IDEA) supports greater self-determination
on the part of students with disabilities by mandating their involvement
in the Individualized Education Program (IEP) process. one means
of fostering self-determination is to encourage students to lead
their IEP meetings whenever possible. This makes the program their
own, and increases the likelihood that it will be carried out. Resources
are available to help with this process (National Information Center
for Children and Youth with Disabilities, 2002a, 2002b).
Self-Determination
Curricula
Dozens of curricula
have been developed to enhance self-determination for students with
disabilities. Wood, Test, Browder, Algozzine, and Karvonen (2000)
developed a summary of available self-determination curricula, indicating
the audience for each, the skills taught, the cost of the curriculum,
and whether the curriculum has been field-tested. This document
is available online at http://www.uncc.edu/sdsp/sd_curricula.asp.
A list of readily available curricula that have been field-tested
and address a range of needs is included in the Resources section
of this Brief.
Conclusion
Self-determination
helps youth with disabilities achieve positive adult outcomes. Several
curricula are available to help students learn self-determination
skills, and to help families support youth. Beyond youth and their
families, others such as teachers, employers, and institutions also
need to be committed to creating and maintaining an environment
in which self-determination can take place. The result will be a
measurable increase in self-sufficiency and, perhaps even more importantly,
greater sense of purpose and satisfaction in adulthood.
Promoting
Self-Determination in Youth with Disabilities: Tips for Families
and Professionals |
| Promote
Choice Making
- Identify
strengths, interests, and learning styles;
- Provide
choices about clothing, social activities, family events,
and methods of learning new information;
- Hold
high expectations for youth;
- Teach
youth about their disability;
- Involve
children and youth in self-determination/self advocacy;
opportunities in school, home, and community;
- Prepare
children and youth for school meetings;
- Speak
directly to children and youth;
- Involve
children and youth in educational, medical, and family decisions;
- Allow
for mistakes and natural consequences;
- Listen
often to children and youth.
Encourage
Exploration of Possibilities
- Promote
exploration of the world every day;
- Use
personal, tactile, visual, and auditory methods for exploration;
- Identify
young adult mentors with similar disabilities;
- Talk
about future jobs, hobbies, and family lifestyles;
- Develop
personal collages/scrap books based on interests and goals;
- Involve
children and youth in service learning (4H, AmeriCorps,
local volunteering).
Promote
Reasonable Risk Taking
- Make
choice maps listing risks, benefits, and consequences of
choice;
- Build
safety nets through family members, friends, schools, and
others;
- Develop
skills in problem solving;
- Develop
skills in evaluating consequences.
Encourage
Problem Solving
- Teach
problem solving skills;
- Allow
ownership of challenges and problems;
- Accept
problems as part of healthy development;
- Hold
family meetings to identify problems at home and in the
community;
- Hold
class meetings to identify problems in school;
- Allow
children and youth to develop a list of self-identified
consequences.
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Promote
Self Advocacy
- Encourage
communication and self-representation;
- Praise
all efforts of assertiveness and problem solving;
- Develop
opportunities at home and in school for self-advocacy;
- Provide
opportunities for leadership roles at home and in school;
- Encourage
self-advocates to speak in class;
- Teach
about appropriate accommodation needs;
- Practice
ways to disclose disability and accommodation needs;
- Create
opportunities to speak about the disability in school, home,
church, business and community.
Facilitate
Development of Self-Esteem
- Create
a sense of belonging within schools and communities;
- Provide
experiences for children and youth to use their talents;
- Provide
opportunities to youth for contributing to their families,
schools, and communities;
- Provide
opportunities for individuality and independence;
- Identify
caring adult mentors at home, school, church, or in the
community;
- Model
a sense of self-esteem and self-confidence.
Develop
Goal Setting and Planning
- Teach
children and youth family values, priorities, and goals;
- Make
posters that reflect values and are age-appropriate;
- Define
what a goal is and demonstrate the steps to reach a goal;
- Make
a road map to mark the short-term identifiers as they work
toward a goal;
- Support
children and youth in developing values and goals;
- Discuss
family history and culture--make a family tree;
- Be
flexible in supporting youth to reach their goals; some
days they may need much motivation and help; other days
they may want to try alone.
Help
Youth Understand Their Disabilites
- Develop
a process that is directed by youth for self-identity: Who
are you? What do you want? What are your challenges and
barriers? What supports do you need?
- Direct
children and youth to write an autobiography;
- Talk
about the youth's disability;
- Talk
about the youth's abilities;
- Involve
children and youth in their IEP;
- Use
good learning style inventories and transition assessments;
- Identify
and utilize support systems for all people.
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References
Abery, B. &
Stancliffe, R. (1996). The ecology of self-determination. In D.
J. Sands & M. L. Wehmeyer (Eds.), Self-determination across the
life span: Independence and choice for people with disabilities
(pp.111-146). Baltimore: Paul H. Brookes.
Deci, E. L.,
& Ryan, R. M. (1985). Intrinsic motivation and self-determination
in human behavior. New York: Plenum.
Deci, E. L.,
& Ryan, R. M. (2000). The “what” and “why” of goal pursuits: Human
needs and the self-determination of behavior. Psychological Inquiry,
11, 227-268.
Martin, J. E.,
& Marshall, L. H. (1996). Infusing self-determination instruction
into the IEP and transition process. In D. J. Sands & M. L. Wehmeyer
(Eds.), Self-determination across the lifespan: Independence
and choice for people with disabilities (pp. 215-236). Baltimore:
Paul H. Brookes.
National Information
Center for Children and Youth with Disabilities (2002a). A student’s
guide to the IEP. Booklet #ST1. (2nd ed.). Retrieved July 22, 2002,
from http://www.nichcy.org/pubs/stuguide/st1book.htm
National Information
Center for Children and Youth with Disabilities (2002b). Technical
Assistance Guide: Helping students develop their IEPs. Booklet
#TA2 (2nd ed.). Retrieved July 22, 2002, from http://www.nichcy.org/pubs/stuguide/ta2book.htm
Ryan, R. M.,
& Deci, E. L. (2000). Self-determination theory and the facilitation
of intrinsic motivation, social development, and well-being. American
Psychologist, 55, 68-78.
University of
Illinois at Chicago National Research & Training Center (2002).
Self-determination framework for people with psychiatric disabilities.
Chicago, IL: Author. Retrieved July 18, 2002, from http://www.psych.uic.edu/UICNRTC/sdframework.pdf
Wehmeyer, M.
L. (1992). Self-determination and the education of students with
mental retardation. Education and Training in Mental Retardation,
27, 302-314.
Wehmeyer, M.
L., & Kelchner, K. (1995). The Arc’s self-determination scale.
Arlington, TX: The Arc.
Wehmeyer, M.
L., & Kelchner, K. (1996). Perceptions of classroom environment,
locus of control and academic attributions of adolescents with and
without cognitive disabilities. Career Development for Exceptional
Individuals 19(1), 15-29.
Wehmeyer, M.
L., Kelchner, K., & Richards, S. (1996). Essential characteristics
of self-determined behavior in individuals with mental retardation.
American Journal on Mental Retardation 100(6), 632-642.
Wehmeyer, M.,
& Schwartz, M. (1997). Self-determination and positive adult outcomes:
A follow-up study of youth with mental retardation or learning disabilities.
Exceptional Children, 63(2), 245-255.
Wood. W. M.,
Test, D. W., Browder, D. M., Algozzine, B., & Karvonen, M. (2000).
A summary of self-determination curricula and components. Retrieved
July 22, 2002, from http://www.uncc.edu/sdsp/sd_curricula.asp
Resources:
Curricula
Student-Led
IEPs: A Guide for Student Involvement (Authors: M. McGahee,
C. Mason, T. Wallace, and B. Jones)
Packed with practical ideas, forms and approaches, this publication
provides you with suggestions for starting a student-led IEP program,
helping students understand their IEPs, engaging students in developing
IEPs, preparing students to participate in or lead an IEP meeting,
and monitoring ongoing self-advocacy. For further information: The
Council for Exceptional Children, 1110 North Glebe Road, Suite 300,
Arlington, VA 22201-5704. Phone: 888-232-7733. Fax: 703-264-9494.
Web: http://www.cec.sped.org/bk/catalog/iep.html
Choice Maker
Instructional Series (Authors: J. E. Martin, L. H. Marshall,
L. Maxson, P. Jerman, W. Hughes, T. Miller, & T. McGill)
Choice Maker consists of three instructional packages that teach
seven self-determination constructs. For further information: Sopris
West, 4093 Specialty Place, Longmont, CO 80504. Phone: 303-651-2829.
Web: http://www.sopriswest.com/swstore/product.asp?sku=629
NEXT S.T.E.P.:
Student Transition and Educational Planning (Authors: A. S.
Halpern, C. M. Herr, B. Doren, & N. K. Wolf)
For further information: Pro-Ed, 8700 Shoal Creek Boulevard, Austin,
TX 78757. Phone: 800-897-3202. Web: http://www.proedinc.com/store/index.php?mode=product_detail&id=9265
Self-Determination
for Youth with Disabilities: A Family Education Curriculum (Authors:
B. Abery, K. Arndt, P. Greger, L. Tetu, A. Eggebeen, J. Barosko,
A. Hinga, M. McBride, K. Peterson, & L. Rudrud)
This curriculum is designed for use with families, with the guidance
of facilitators. For further information: Institute on Community
Integration, University of Minnesota, 102 Pattee Hall, 150 Pillsbury
Drive SE, Minneapolis MN 55455. Phone: 612-624-4512. Web: http://ici.umn.edu/products/curricula.html#self
Steps to
Self-Determination: A Curriculum to Help Adolescents Learn to Achieve
their Goals (Authors: S. Field & A. Hoffman)
For further information: Council for Exceptional Children, 1110
North Glebe Road, Suite 300, Arlington, VA 22201-5704. Phone: 888-232-7733.
Web: http://www.cec.sped.org/bk/catalog2/self.html
Take Charge
(for youth ages 12–15) and Take Charge for the Future (for
youth ages 15-20) (Authors: L. Powers, R. Ellison, J. Matuszewski,
R. Wilson, & A. Turner)
These two curricula are intended for students considered to be at-risk
due to health challenges, physical/learning/emotional disabilities,
and/or family/community stresses. For further information: Oregon
Health Sciences University Center on Self-Determination, 3608 SE
Powell Blvd., Portland, OR 97202. Phone: 503-232-9154. Web: http://www.ohsu.edu/selfdetermination/products.shtml
A Teacher’s
Guide to Implementing the Self-Determined Learning Model of Instruction:
Adolescent Version (Authors: M. Wehmeyer, M. Agran, S. Palmer,
D. Mithaug, & C. Blanchard)
For further information: The Arc of the United States, 500 E. Border
Street, S-300 Arlington, TX 76010. Phone: 800-433-5255.
Whose Future
is it, Anyway? A Student Directed Transition Process (Authors: M.
Wehmeyer & M. Lawrence)
This curriculum is designed for middle school and high school age
students with mild to moderate intellectual, developmental, or learning
disabilities. For further information: The National Publications
Desk, 2904 Valleyview Drive, Grapevine, TX 76051. Phone: 888-368-8009.
Web: http://www.thearcpub.com
Resources:
Web Sites
Center on
Self-Determination, Oregon Health & Science University
Information about policies and practices that promote the self-determination
of people with and without disabilities. Web: http://cdrc.ohsu.edu/selfdetermination/
Self-Determination
Synthesis Project, University of North Carolina, Charlotte
Information about self-determination resources, including research
references, curricula, Web links, and other materials. Includes
links to many lesson plans. Web: www.uncc.edu/sdsp
Further Reading:
Field, S., Martin,
J., Miller, B., Ward, M, & Wehmeyer, M. (1997). Practical guide
for teaching self-determination. Arlington, VA: Council for
Exceptional Children.
Mithaug, D.,
Wehmeyer, M., Agran, M., Martin, J., & Palmer, S. (1998). The Self-Determined
Learning Model of Instruction: Engaging students to solve their
learning problems. In M. L. Wehmeyer & D. J. Sands (Eds.). Making
it happen: Student involvement in education planning, decision making
and instruction (pp. 299-328). Baltimore: Paul H. Brookes.
Sands, D. J.,
& Wehmeyer, M. L. (Eds.). (1996). Self-determination across the
life span: Independence and choice for people with disabilities.
Baltimore: Paul H. Brookes.
Authors Christine D. Bremer, Mera Kachgal, and Kris Schoeller
are with NCSET.
There
are no copyright restrictions on this document. However, please
cite and credit the source when copying all or part of this material.
This
report was supported in whole or in part by the U.S. Department
of Education, Office of Special Education Programs, (Cooperative
Agreement No. H326J000005). The opinions expressed herein do not
necessarily reflect the policy or position of the U.S. Department
of Education, Office of Special Education Programs, and no official
endorsement by the Department should be inferred.
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publication is available in an alternate format upon request. To
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